We will never be able to say
"remember when Joseph had cerebral palsy?" it will be with him for the rest of his life.
That makes me terribly sad some days.
I try not to think about it some days I do. But some days it's painfully obvious to me. As he gets older there is so much more work to be done. He is sleeping now. Resting. That is when my mind really cooks. Its more than helping him straighten his hand, use both hands, quizzing him, challenging him. At night is when I read and research and search for things that can help him. And it's when the sadness it hits me.
I pray for miracles.
There is no cure only acceptance and management.
8 comments:
To the asshole that sent the previous comment, shut the hell up! If you want to criticize someone on another subject is one thing, but you've crossed the line on this one. You're not Karma, you're a coward for spouting off without the balls to say who you are. Speaking of Karma, I sure hope you don't ever have a crisis in your life, Karma goes both ways!
I agree.
Wouldn't a Christian person ask, what pain are you feeling and what is wrong with your child instead of instantly assuming the person needs to be told off. I hear pain in the man's e-mail.
Hi.
I don't know much about you, or Joseph-- I happened across this post via a search for "Cerebral Palsy," and I just wanted to encourage you-- there are a lot of good things in your son's future, no matter what his limitations are. I live with congenital amputation (I don't have a left forearm or hand) and cerebral palsy every day, and I am a happy person. Every person is different, and sometimes we face tough challenges-- that's true whether CP is in the picture or not. As I see it, what helps me to be happy is living my life with as much gusto as I can, taking on new challenges and not shrinking back from things that might be scary or difficult. Joseph has the most important key to happiness already-- a loving Mom.
I don't know you, so I am probably telling you stuff you already know-- I suggest that you not worry about what Joseph can and cannot do! Most of the people I know who have disabilities exceed the expectations of everyone. I suggest you cheer him on in everything he does; that will help him see the worth in putting himself out there.
God Bless you, and if you'd like to know more about CP from the perspective of an adult who lives with it, come visit me at wheelz.blogspot.com, and leave a comment.
Post a Comment